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NEWLY PLACED
The two most powerful words between you and another struggling are: "me too".
We understand your current situation and want to assure you that you are not alone. Thousands of families stand with you throughout your journey, regardless of what lies ahead.
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The feeding tube journey is unique, and we aim to provide resources that can assist you and your entire family, through our support services and programs, in partnership with your medical team. We have parents and staff members eager to connect with you as you embark on this new path, and we are excited to learn more about you and your family.
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We organize monthly video support groups specifically for newly diagnosed families and offer a dedicated Facebook group with peer support mentors. Don't forget to check out our latest events.
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Remember, when you're ready, we're available 24/7 to support you.
Finding us early in your NICU journey means we can offer steadfast support and strength for you, your family, and your little ones. Grasping the concept of a feeding tube can be overwhelming, especially when faced with a flood of new information. It's normal to wonder about the future or if your baby will always need a feeding tube. You might have gotten a "wait and see" response from your medical team to such questions. While this might seem frustrating or vague, rest assured, it's not out of disregard for your worries. Typically, NICU babies start with a feeding tube until they're strong enough to do without it, and that can be scary. NICU babies consistently show incredible resilience, but it does take time to see what the future holds for your child. To learn more about what the NICU journey may look like for you and your family, click here.
The First Year
During the first year of your child having a feeding tube, there can be a lot of stress, anxiety, and guilt to work through, as well as a lot of information to remember. It's okay to feel unorganized during this new life transition. From hospital to home, we're here to help make you more confident and more comfortable as you navigate the first year of the feeding tube journey.